Friday, December 4, 2009
Catscan
(This is one of Brian's paintings. Cat Gift. You might have missed the protective overlay.)
On Wednesday I had a CT scan. I had had some pain in my neck and ordering tests is what my doctor does in the face of pain, so they scheduled the scan for Wednesday afternoon. I told them during the scheduling, just like I was supposed to, that I am allergic to iodine. Last time I had a scan, an MRI, we all found out about that allergy.
You can feel the iodine zipping through your veins; from the needle in your arm it races down into your hand and at the same time, from just below where your elbow bends, up and then on through your neck and right across your face. You can taste the metal as it moves through your mouth. It feels warm and oddly cozy as it passes down your torso and legs, maybe because scanning rooms are so darned cold that even an illusory warmth is comforting. And if you are like me, at the moment the iodine passes across your nose and palate, a moment I already find funny because it reminds me so clearly that I am divided cleanly down the middle, two symmetrical half people glued along a central axis and trying to get along nicely, just at that moment, you start to sneeze. In response to your sneezing the room fills with people in a swift and uncanny way. And probably because of the sneezing, you can't see where they
come from.
That sneezing was a revelation. I would have said, had you asked me (though you would never have asked) that I perfectly understood allergies and the human sneeze reaction. Had had, in fact, rather a lot of experience in that area. Not, of course, I would have humbly submitted, as much as some people, but enough, in my opinion, to say that I perfectly understood. Turns out I did not understand the sneezing that allows for no breathing, that sucks air up stupidly, in a messy way and without caring if there is enough left over for human respiratory needs, just shoving and grabbing air any old how to throw and throw into sneezes. It was so unexpected and so profound and extreme that it was the funniest thing that had ever happened to me. Add hysterical laughter to the list of oxygen-hungry activities I was attempting to undertake simultaneously.
No one else laughed.
Afterward, they told me that if I ever had to have another scan I was to be sure to tell the schedulers about my allergy. Nurses and a doctor came and repeated those instructions several times. They were worried I would forget. Probably because of the enormous amounts of antihistamine flowing, along with the iodine, through the IV and my veins.
I didn't forget. But I did forget that I would never be allowed to drive myself to a test again.
Bri is gone on Wednesdays. He explained to me for a long time (this is the part he will re-explain) that he would do whatever I needed him to do and if what I needed him to do was come to Provo on Wednesday and drive me to the test, that was fine and he absolutely would and it was going to cost us hundreds of dollars that would be better used to pay for the test and that he would do it of course, I just had to tell him and he would find someone else to drive me. I just had to say what I wanted and he would do the other thing.
I had a really strong reaction to this. Really. I wanted to throw something at him through the phone. I felt like I was going to cry, or start screaming. I felt like I couldn't breathe. I realized I was going to have to tell my children so we could work out the timing. I was going to have to ask for help and that was something I felt I could not do. Could not. Die first. Run away. Suffocate.
Where on earth was this coming from?
Oh, well, actually I knew where. Exactly where. This was an overpowering, unconsidered instinctive response. Hide. This was an unreasoning fight against a terrible fear. I was going to have to show myself. I was going to have to tell. I never tell. I hide the blood and clean the cut when I get home and I don't limp on the way. I did not have a single person I wanted to show this to. If my kids read this they will find out for the first time that I ever had an MRI and no one will ever know why. I never tell. I hate phone calls, but of all the hateful phone calls. I was going to have to tell.
I didn't swear because my children are making me quit but I prayed and then called a friend and she just said, yes, she could do that. Like nothing. She drove me and she asked why I needed this test in a very loving way and I told her and I lived through it. While she drove carefully (she's a very careful driver and always on time) I deeply searched my soul, really questioned my inability to ask for help and realized that my heart is sort of broken and that there is something terribly wrong with being unable to reach out to people when you need help. And resolved never to do it again.
In the check-in line at Imaging I heard several people giving their information and they were all referred by my very own same doctor. Hmmm.
They still use iodine, even if it makes you sneeze like you need the Exorcist. They pump you full of prednizone and benadryl the twenty four hours before the test, and you have a suppressed allergic reaction which for me was two sneezes, one before and one after the scan, and terrible throat and eye itching. And you are very, very weird and it lasts for days. Everything just seems far to big to get around. For example. The nurse asked me to sign a paper--but I had an IV in my right elbow! She explained, oh no, honey, that was fine; flexible needle, see? Which, to my immuno-distressed self, was just so much more horrible. Ok, accommodating the IV by being careful, that's icky and probably painful, but bending..?? And then she left me to get dressed saying that the IV needed to stay a part of me for a while in case I --you know, sneezed or something--but said to remember that needle wouldn't give me a bit of trouble. Bendable. Right. Thanks. I thought about throwing up and put my head against a rack full of old deer and fish magazines and waited for her to come release me.
My friend drove me home and dropped me off. No children were worried. No one asked about the test results or lost sleep or thought I might die. No one else found out. The doctor's office did not call within the twenty four hour period in which I was supposed to hear from them. When they finally did call, today, Friday, they kept me waiting for twenty minutes while they--what? tried to remember what they wanted to say to me?--and I tried to decide whether being kept waiting that long was a good sign or a bad one and why it would be a sign of anything, anyway.
Test results: nothing.
"Wait," I say on the phone as the tech is hanging up,"wait. I came in with pain. The test shows nothing about that."
"Right," she says brightly, hanging up again.
"Wait," I say, "what do I do about the pain?"
"What? Oh. Oh. Well. I'll have to ask about that...the doctor is gone now...maybe Monday...can you call on Monday?"
Oh sure. Absolutely. It had taken more than a month to ask the doctor for help in the first place..
the photo is Noah's
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Love you...love the photo. Glad you didn't die from the reaction. I never knew any of this of course. I would like to talk to you some time about some of this. Do you think we all need counseling or something, I mean you seem to have a lot of the same weirdnesses that I do. Makes life more difficult. Oh, and by the way, whatever mom tells you I like to make my own collections.
ReplyDeletei'm glad to hear that the scan came back clear, but then the whole pain thing still really stinks. (so, ! for the clearness, but not for the pain). also, a definite ! for not dying from the iodine. not cool. going to the doctors is the worst and i'm sorry that this was such a traumatizing experience. :( i would drive you to the doctor. the plane flight from here would have taken some time, but perhaps i could have aparated or something.
ReplyDeleteWell, I guess we can talk, Caitie. Part of this whole thing is hiding behind the blog so I don't have to talk to real people. But, I guess...
ReplyDeleteAnna, I know you would have driven me. Lots of people are saying that. I just have this little problem asking.
Thank you for sharing. Yours is a voice I value.
ReplyDeleteThanks for including us in your blog-------we need to have a big Spence reunion so we can all connect as family. God Bless Noah on his mission and all your family!!
ReplyDeleteChrissy(Cheyenne Wy cousin)
I sure am glad I didn't read this until after I had that ct scan the other day. I was absolutley terrified that I would have a reaction to the contrast. If I had read this before hand I probably would have ripped the IV out and made a run for it. I'm sorry I tell you all my problems. I guess you probably hate it.
ReplyDeleteThank you, all of you.
ReplyDeleteCami; do not.